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MY STORY is a new regular blog we will be featuring on the Baby Bella website. If you have a story you'd like to share, whether it is on your birth, pregnancy or any aspect of parenting please email us with a brief outline and we will get back to you. Those we choose to publish will receive a $100 gift voucher from Baby Bella Lismore or Coffs Harbour. Thanks to Sarah for sending in this story about her gorgeous little boy, Beau.
My pregnancy with Beau started off quite normally but at the 20 week scan we found out that he had a 2 vessel cord instead of 3 so from about 28 weeks onwards he took protein, iron and other nutrients from me which made me sick during that period.
On the 27th October 2012, after a 3 1/2 hour very active labour, Beau was born 3.68kgs (8 pound 2 ounces).
When the area health nurse came around for his 4 week check up I asked her about his breathing as it was deeper than I thought it should be. She said she doubted it would be anything but to take him to the Doctors and see what they thought. I took him that afternoon and our Doctor told me to take him straight to Lismore emergency. The next thing I knew, he had cords all over him and needles in him, with the Doctors asking me heaps of questions.
We ended up staying in hospital for 4 nights, he had X-rays and ultrasounds which lead to the conclusion that he had a VSD (extra large hole in his heart). We then got transferred to Brisbane Mater Hospital to the cardiac specialist, Dr Ben Anderson, who found more problems with his heart.
They discovered Beau had a VSD, ASD (Atrial Septal Defect which stops blow flow from one side of the heart to the other), an extra artery coming from his brain to his heart and the right artery on his heart was enclosed.
After booking a surgery date we saw his specialist here in Lismore and he found that Beau has a respiratory problem called 'tracheomalacia' which means he has no 'C' shape cartilage to open his airways so they are 'floppy' and very narrow, he also has problems with his right lung.
On the 1st March (4 months of age) Beau went into surgery. We were told to give him a kiss and a hug and hope for the best as they did not expect him to come off the operating table.
After 8 1/2 hours we got a call from the surgeon who said that Beau did fantastic during surgery, they had a few complications but he was now in intensive care awaiting our visit.
He was in intensive care for four days, in the cardiac watch unit for two nights and then in the general cardiac ward for another two nights. During this time we had a few set backs but he pulled through all of them.
We all came home once he was discharged and tried to get into a routine. At the end of April we went back for a checkup and his specialist was very pleased with his progress.
On the 29th October this year, two days after his 1st birthday, we went for a second check-up. His specialist was pleased with how he has progressed but is concerned that his right artery (which they expanded during the operation) hasn't grown as much as they had hoped. He is also concerned with his breathing as Beau gets breathless and tires very easily.
He has another check up in 6 months.
We have set up a Facebook page "Baby Beau Heart Appeal" where you can read more information about his condition and progress. We also welcome any donations to assist with the ongoing costs of Beau's condition.
We would like to thank Sarah for sharing her story with us. Pregnancy, child birth and parenthood can often be filled with challenges and it's great to hear stories of our customers bravely overcoming these obstacles.